First European Congress for Teens with Lymphedema

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First European Congress for Teens with Lymphedema

Postby patoco » Sat Jul 08, 2006 8:07 am

First European Congress for Teens with Lymphedema

On 27, 28 and 29 of October 2006

The first European Congress for youngsters with lymphedemawill be held in Vitoria, Spain.

The congress is meant for youngsters in the age range of 13-18.Purpose is to share information and experiences.

No admission fees.

Last date for registration: October 1, 2006.Contact for further information:

AdelpriseFederation Vicente AbreuC/Painting Vicente Abreu 701008 Vitoria SPAIN

Tel. 945 226 061 or 630 618 103

adelprise@yahoo.es

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REGISTRATION INFORMATION:

INTRODUCTION

The Adelprise Lymphedema Association (Association of patients affected by Primary and Secondary Lymphedemas) believes that due to the lack of existing information it is time to celebrate the “I Encounter of Youngsters and Teenagers affected by Lymphedema.”

The knowledge and insights gained from these workshops are important because from the moment an individual is diagnosed with lymphedema they need to understand this condition, know how it affects their body, and learn how to successfully manage the treatment of this condition.
We also believe it is important to understand the steps to protect against making the condition worse and to know how to use the self-help resources that can improve the quality of life.

Having lymphedema creates emotional and social difficulties especially for young patients and their families. Separate sessions for youth and their parents will provide insights that increase the potential of successful treatment and an improved quality of life.

OUR OBJECTIVES ARE TO:

¯Provide participants with useful information about current therapies and opportunities to practice these skills.

¯Encourage particpants to share fun with supportive new friends while gaining insights that can improve their quality of life.

Organizing Committee:

Raúl Calleja de Busts
Merche Sánchez González
Maite Alonso Duarte
Pablo Montero Garzo
Teresa Merino Clemente
Zuriñe Blasco Etxeguren

Scientific Committee:

Dra. Adora Fernández Domene
Ana Belen Pardo Porto
Luís Miguel Amurrio
Amaia San Miguel López
Mª Jesus Gómez Lago

SUGGESTED LODGING - International Dialing Code and Telephone #

Hotel Barcelo * * * 34 945130000
Hotel Chancellor Ayala * * * * 34 945228100
Hotel Wellinton * * 34 945175707
Hotel Atxuri * * 34 945255800
Hotel Fact * * 34 945147230

Note: Lodging and meals are at the participant’s expense

WHO SHOULD ATTEND

* Youngsters from all countries between the ages of 12 to 18 years who are affected by Lymphedema.

* Presentations will be in Spanish and English.

REGISTRATION

There is no charge for registration; however it is necessary to complete and return the registration form before October 1, 2006. Attendance is limited and early registration is recommended.

Mail this to:

THE ASSOCIATION ADELPRISE
C/VICENTE ABREU N UNDER 01008
VITORIA-GASTEIZ (SPAIN)

Youth must include a completed “Parent’s Permission and Authorization
Form,” signed by either parent or their tutor, authorizing the attendance and participation in the Youth Encounter.

Participating youths must be accompanied
by an adult, parent, or properly credited tutor.


PRACTICAL INFORMATION

* Participants should wear comfortable clothes to the workshops.

* Those attending the self-bandaging workshop must bring their own bandages.

PROGRAM

FRIDAY, OCTOBER 27, 2006

4:00 - 4:30 pm Greeting and Documentation Delivery

4:30 - 7:30 SELF HELP WORKSHOP

D. Luís Miguel Amurrio (Psychologist of AACC of Álava)

THEORETICAL – PRACTICAL CLASS
PowerPoint presentations on important topics
Group discussions of these concerns
Sharing experiences and insights
Addressing problems and sharing solutions
Stress reduction techniques to improve the quality of life.

19.30 h. - PAST, CURRENT SITUATION AND PERSPECTIVE OF FUTURE OF THE LYMPHEDEMA

Mrs. Zuriñe Blasco Etxeguren (President of Adelprise)

Addressing problems and sharing solutions
Stress reduction techniques to improve the quality of life.

SATURDAY—OCTOBER, 28

9:30 to 1:30 (with a half hour break).

WORKSHOPS:

Self-Manual Lymph Drainage, Prevention

Techniques, and Self-Care Of Lymphedema

Mª Jesus Gómez Lake - Physiotherapist and
Mª Ángel Santamaría Aspiazu-Nurse Graduate

PRACTICAL THEORY:

The lymphatic system

Location of the lymph glands

Functions of the lymphatic system

Rules for self-manual lymph drainage

Movements to stimulate lymph glands

Learning about the directions for drainage of the lymphatic system.

Guidelines on the importance of preventing the complications of lymphedema.

Recommendations to keep in mind regarding self- care, infections, hygiene, and rules for daily life.

2.00 noon Lunch Break

4:00 FUNCTIONAL RECOVERY OF LYMPHEDEMA

Pedro Gómez de Segura (Graduated in Physical Education)

PRACTICAL CONTENT

Breathing Exercises
Exercises for the neck, shoulders, elbows, hands, and fingers
Stimulation of the trunk and abdomen areas
Mobilization of the hips, legs, knees, ankles, feet, and fingers

6:00 pm

ROUND TABLE DISCUSSION

"Medical Aspects of the Lymphedema, and Support Treatment Therapies"

8:30 JOINT DINNER FOR PARTICIPANTS (Optional)

SUNDAY, OCTOBER 29, 2006
9.30 h.

SELF-BANDAGING WORKSHOP

Dra. Fernández adores Domene
(Teacher of scientific and practical Manual Lymphatic Drainage)

THEORETICAL – PRACTICAL CLASS

Lymphatic anatomy of the affected areas
Demonstration of materials used for bandaging
Caution and care to take with the bandages
Active and participative class
Self-bandaging demonstration
Learning of the technique individually
Help exercises

1:30 pm - Participants joint Conclusions

2:00 - End and farewell of the Youth Encounter

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REGISTRATION FORM

I Joint Meeting of Youngsters With Lymphedema Registration

FormRegistration is FREE but must be completed by October 1, 2006

Full Name _________________________________________ Age

_________________

Street Address

___________________________________________________________

City ________________________________________

State __________________________________

Zip/Postal Code______________________

Country _________________________

Telephone ___________________________

E-Mail _____________________________

Optional Joint Dinner: 20 Euros (Please check yes if you will be attending)

[ ] YES, I plan to attend this dinner.

[ ] NO, I do not plan to attend the dinner.
SIGNATURE____________________________________

*For the optional Joint Dinner, please make payment to the following

CAJA LABORAL

Authorization from Parent or TutorI do hereby give permission for this youth to attend I JOINT MEETING OF YOUNGSTERS WITH LYMPHEDEMA

Name of Attendee _________________________________________

Age ___________

Street Address ____________________________________________

City ________________________________________

State __________________________________

Zip/Postal Code__________________________

Country _________________________

Telephone ___________________________

E-Mail _____________________________

Signature of Parent or Tutor

_____________________________________

Please circle title to indicate of Parent or Tutor:

Please return the Registration Form
and a copy of Bank Receipt to confirm Attendance to the Joint Dinner to:

ASSOCIATION ADELPRISE
C/VICENTE ABREU Nº UNDER 01008
VITORIA-GASTEIZ (SPAIN)

Registration date limit: October, 1, 2006

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Primer Congreso-Encuentro Europeo de Jóvenes con Linfedema

“ TERAPIAS DE APOYO EN EL TRATAMIENTO Y ADAPTACIÓN SOCIAL”

La Asociación de Linfedema ADELPRISE pone en conocimiento la próxima celebración del Primer Congreso-Encuentro Europeo de Jóvenes con Linfedema, enfocado principalmente para que éstos chicos puedan compartir experiencias, y se apoyen mutuamente en su condición.

Este Congreso-Encuentro estará dirigido por distintos profesionales especializados, y es para jóvenes de entre 13 a 18 años.

La inscripción y participación son gratuitas.

El viaje y la acomodación son por cuenta de los participantes. Se organizarán grupos de edades distintos, si la demanda lo requiere.

Simultáneamente se celebrará el X Aniversario de Adelprise, con eventos abiertos y dirigidos a todos/as los/as demás afectados y público en general, y también recomendada para los padres o cuidadores de los jóvenes.

Las personas interesadas en asistir y participar deben solicitar y devolver los formularios debidamente rellenados antes de la fecha indicada.

El interés primordial de los organizadores de éste encuentro es proporcionar información, evitar aislamientos, dar esperanza, y transmitir optimismo a los jóvenes, para que en el futuro puedan tener y disfrutar de una buena Calidad de Vida.

PROGRAMA

VITORIA - Días: 27, 28 y 29 de Octubre - 2006 / Resumen de Actividades

•Recepción a los asistentes y entrega de Documentación
•Charla sobre Linfedema, su pasado, la situación actual, y las perspectivas de futuro
•Aspectos Médicos del Linfedema
•Terapias de apoyo en el tratamiento de Linfedema
•Recuperación Funcional •Taller de Auto-Ayuda •
Taller de Auto-Drenaje

Dirección para solicitar Información y formularios del I Congreso Encuentro de Jóvenes con Linfedema:

ADELPRISE

Asociación de Enfermos de Linfedemas Primarios y Secundarios

FEDERACIÓN VICENTE ABREU C/ Pintor Vicente Abreu, 7, 01008 Vitoria- Gastéis

Tel. 945 226 061 ( Zuriñe ) 630 618 103

e-mail: adelprise@yahoo.es

Fecha límite de entrega de formularios para inscripción: DIA 1 DE OCTUBRE 2006

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Lymphedema People

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