lymphedema surgery

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lymphedema surgery

Postby Annbray » Tue Apr 02, 2013 3:10 pm

Pat, I am curious if you read the article in last issue of NLN regarding Dr. Jay Graznow? After reading the article I perused his website. It seems from the article in NLN that he has never had a patient's condition worsen, only improve either minimally or significantly. How come there is not very much discussion about this procedure, why would it not be deemed safe (not been performed for a long enough time?) and who/were are the other doctors belonging to this small population of surgeons performing this type of procedure?

Any more info would be greatly appreciated. :D
Annbray
 
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Joined: Wed Feb 06, 2013 4:08 pm

Re: lymphedema surgery

Postby patoco » Wed Apr 03, 2013 10:00 am

Hi Ann

Yes, I did read the article and have chatted with several doctors who have performed the procedure. There has been lots and lots of discussions about it - everywhere.

It is still considered experimental though and can only help a certain types of lymphedema. It has not been done long enough to really get good stats on its effectiveness and safety, hopefully as time goes there will be more attention paid to it.

BTW, which specific surgery are you referring too? The Vascularized Lymph Node Transfer or the Lymphaticovenous Anastomosis? Answeres are the same for both.

Pat
patoco
 

Re: lymphedema surgery

Postby Annbray » Wed Apr 03, 2013 2:20 pm

I was referring to Dr. Graznow's FLO system which is all three he performs (Lymphatic liposuction being the third.) I am a primary LE so I was thinking it may provide hope for me down the road...the Liposuction for reshaping the ankle and the lymphaticovenious anastamosis for helping drainage.

Your answer is what I suspected. Not proven enough yet. But, seems it's a huge ray of hope on the horizon!!!

I wonder who I would consult with if it would be appropriate for me down the road? I am going to keep abreast of the topic. Do you know anyone in Chicago area involved with pioneering this?

thanks!
Annbray
 
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Joined: Wed Feb 06, 2013 4:08 pm

Re: lymphedema surgery

Postby patoco » Thu Apr 04, 2013 11:44 am

Hey there

Why not just write to Dr. Graznow, himself? I would be very curious as to what his response would be.

Here are a couple more you might write:

David W. Chang, MD, FACS - Professor, Department of Surgery, Director of the Microsurgery Laboratory, University of
Texas M.D. Anderson Cancer Center. He holds joint appointments as clinical associate professor, Dept. of Surgery at Baylor
College of Medicine, and adjunct associate professor at the Dept. of Biomedical Engineering at Rice University. Dr. Chang
specializes in complex microsurgical reconstructive surgery in cancer patients involving all areas of the body, his primary
research focuses in breast reconstruction and restoration of extremity defects such as lymphedema.

Joseph L. Feldman, MD, CLT-LANA - Dr. Joseph Feldman is Co-director of the American Lymphedema FFramework
Project. Dr. Feldman is one of the founding board members of the Lymphology Association of Lymphology (LANA) and is the
President of LANA. Dr. Feldman is a physiatrist certified by the American Board of Physical Medicine and Rehabilitation. He
is Medical Director of the NorthShore University Health System Lymphedema Treatment Center and Clinical Assistant
Professor of Physical Medicine & Rehabilitation, University of Chicago Pritzker School of Medicine. Dr. Feldman is a member
of the National Lymphedema Network Medical Advisory Committee and served as Program Director of the 9th NLN
International Conference in 2010. Dr. Feldman has treated lymphedema patients since the1960's. He attended a Leduc
Method Lymphedema Management course in 1996 and attended the first Foldi Clinic Complete Decongestive Therapy
Physician Course in Hinterzarten, Germany, in 1999. Dr. Feldman participates in lymphedema research projects and has
extensively lectured to professional and patient support groups. He was selected as a Chicago Super Doctor for 2012.

I found each of them are very personable and glad to be of help.

Pat
patoco
 


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