Hi Gary
Happy New year
I have both Ptimary and lipedema
Firstly lipedema it is rare men get it but it is not impossible
ok lip signs well if my lymph is under control then i do not have problem
with my feet i do have what i call dohnut rings round my anles they fill with fluid a bit like the michellin man and my legs look like someone has tied them above the ankle i have a definate anklemy legs can fill and overhang the ankle.
as for pain etc I cant tell you hun what is lymph what is lip
had them both all my life i do have lots of lumps from the size of peas to eggs underneath the skin not like boils you can feel them if u run you hand over the skin
andthey get bigger the one in my stomach now protrudes out but still not like a limp but an area swelling
the following info pat did for us and it made lip much easier for me to understand i hope it helps
We tend to think of the lymph system as those inner channels, lymph veins
and nodes. But, there is a very very important other part. This is a complex,
almost microscopic "web" of lymphatics that are in the subcutaneous (fat
layer between outer skin and inner body) tissues.
What they have found is that with primary lymphedema, it is the inner
lymphatics that are either not formed completely or poorly. For example, in the
test I had done, it shows I am missing a very large number of nodes in the
upper leg/lower abdominal areas. The subcutaneous network is fine.
With lipedema, the opposite seems to be true. While the inner lymph
channels/nodes are properly formed, there is a great deal of malformation in the
subcutaneous network. Test indicate malformed, twisted and block microscopic
channels. Indeed, the researchers have even found examples in lipedema where
these microscopic channels actually burst creating a "lymph" aneurysm.
This is important as there seems to be new interest in understanding how the
body forms fat cells and in how these fine lymph network forms within it.
As this system is understood more, it will help in learning not just how to
treat lipedema, but eventually how it can be cured or prevented.
Hope this explains it....let me know.
My best to everyone!!!!!
Pat
http://health.groups.yahoo.com/group/li ... lipoedema/
this is the link to the lipedema site great help there from members sharing many experiences and pats info
hugggggggggggggg hope this is of some help
Silksxxxxxxxxxxxxxxxx