Hi there,
I have managed to locate a Certified Lymphedema Therapist through University of Wisconsin Hospital and Clinics (Occupational Therapy), however I cannot find a physician (primary care or otherwise) who seems to know anything at all about my condition. I am constantly raising new concerns regarding pain and accumulating abdominal fluid, and every time my doc just says to go see the therapist and keep wearing compression. How can I know that there's not a bigger problem (like tumor recurrence) or something else that should be done to keep an eye on my condition, or other therapies that might (or might not) work for me (like a pump)?
Anyone out there found a good doctor in Wisconsin? What should someone with lymphedema reasonably expect/accept from a doctor?